Jonathan López portador de epidermiolisis bullosa ampollar

El es Jonathan López él es portador de epidermiolisis bullosa ampollar conocida como piel de cristal o mariposa.

Su enfermedad en sí es incurable ante la ciencia médica es una enfermedad poco común en Nicaragua caso único pero con muchos cuidos multidisciplinarios medicinas y alimentación especial él ha logrado sus 10 años de vida ya que no le daban ni 2 años de vida mi pequeño a lo largo se ha tenido que someter a procedimientos médicos como lo son injertos y reconstrucciones en diferentes parte de su cuerpo actualmente se encuentra luchando con el transtorno de hinsprung e igual amerita de cirugías reconstrucciones y una cirugía para lograr caminar ya que no lo ha logrado

El amerita poder recaudar fondos para sus cirugías y tratamientos




Organizer Matagalpa Noticias

Columbus, IN

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